Wednesday, January 25, 2012

Moebius syndrome awareness day.

Moebius syndrome is a rare neurologic disorder that affects the 6th and 7th cranial nerves causing facial paralysis and restricted lateral eye movement from birth.

Yesterday was Moebius syndrome Day.  My friend Kathleen R. Bogart is doing research on Moebius syndrome as she works on her doctorate at Tufts University in Boston.

Kathy has Moebius syndrome and is a pioneer in promoting awareness and research on this syndrome. People with Moebius syndrome have difficulty communicating facial expressions to others due to their inability to smile and use some facial muscles.

Kathy Bogart. Taken by NY Times photographer Michelle McDonald.  

So in honor of Kathy and her work, take this day to learn more about Moebius syndrome.

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